How someone is perceived by the world outside, from the Front Page Sections, translated…
“Why do you look so weird?”, this, was the question that Tu, who was diagnosed with Gardner-Morrisson-Abbot syndrome. The children with rare conditions, because of their conditions, they may have different appearances, emotions, as well as their physiques compared to normal children, but, what’s fearful were not the conditions themselves, but the lack of knowledge, the intolerances shown to those who were diagnosed with the various conditions.
The Gardner-Morrisson-Abbot Syndrome is caused by a dominant gene, causing the skulls and facial parts to develop incompletely, when Tu was born, her eyes, and nose were all flattened down, and, her fingers and toes are unseparated like the feet of the ducks, she’s only nine right now, but, in her growing up, she’d already gone under the knife for tracheotomy, facial reassignment surgeries, along with gastric bypass, and many others, a total of almost twenty surgical procedures, and, although the surgeries were hard on her, but, her mother, Yang cold, that the hardest part of it all, is dealing with how the outside world looks upon her daughter.
When Tu was a young child, the moment she’d step foot into the playroom, all the other children were so scared of her that they all, ran scattered; as she became kindergarten aged, Yang, her mother received the call from her child’s school teacher, asking her to keep her daughter at home.
Wan-Yu Tsia, who’s a first year middle school student this year, because of her Achondroplasia, she couldn’t grow any taller, she’d once asked her mother, “Will I keep on being in a wheel chair my whole life, and not be able to stand up?”, Lin, who’d graduated from Fu-Jen University’s, because of her Alstrom’s Syndrome, she’d become, visually impaired, when she was in her statistic course in her freshman year, the professor asked the class what time it was, she’d felt around her braille wristwatch, replied to the professor; the professor said, “You can’t even see, how could you know the time?”
And, all of these instances showed how little the public knows about the rare conditions, including the teachers. The Rare Conditions Foundation estimated, that there are, over two hundred kinds of rare conditions, and nearly fifty percent out of ten thousand families with children diagnosed with rare conditions, there were discriminations in the schooling, the employment, problems in getting accepted socially and getting an education.
Because of how little we know about these conditions, the best way to react to those diagnosed would be, fearing them, that is, an inborn response, but, put yourselves in these people’s shoes, or even, the shoes of their families, would you WANT your loved ones, to encounter that weird look by the rest of the world, when they’re out and about? If not, what can you do, to make sure, that discrimination gets reduced, if it were you, or someone you loved, would you still, look upon those individuals, with that weird eye? I wouldn’t imagine so!
and here is a photo of the individuals from the papers…
